11 Apr What is Person-Centered Research?
Written by Tabassum Majid, PhD
The field of Alzheimer’s disease and related disorders has undergone several changes over the past few years, particularly as more and more thought leaders have shifted the focus from a cure for dementia to caring for the billions of individuals living with these disorders. As a result, several initiatives have begun to look at the role of the person and family in this arduous journey through our health care system. Not only has the shift from a medical model to person-centered care been seen as a good idea, it has also been mandated in our industry by the Centers for Medicare Services, the National Alzheimer’s Plan, and the 21st Century Cures Act at the federal level. Specifically, these initiatives discuss the potential of individuals living in long-term care settings to have potential for growth, creativity, and optimism despite their diagnoses. It speaks to an involvement of staff to center their care on the person’s preferences, natural patterns of living, and involve family members in looking at meaningful ways to engage a person’s very character and function that we look to preserve.
As a result of this, the health services research area is a natural place to look for outcome-based measurements and the impact of these care models on the person, family, and colleague. Our work at the Integrace Institute seeks partnership and research focused on qualitative and quantitative methodologies that are community-based, participatory, and result in real-world outcomes that impact care practices and the lives those take this journey with us each day. Currently, our areas of focus include: Internal Evaluations of the Integrace Person-Centered Model, External Care Practice Research, Caregiver Decision-Making, Technology Preferences, and Prevention Trials. Not only are we focused on a variety of topics at the Institute, we also have a shared stakeholder advisory group that gives input on any project that we would like to extend to our community members, consisting of family members, colleagues, residents, and clinical leadership. In this way, we hope to translate key findings to have impact on those who entrust us with their journey towards meaningful living.
Dr. Majid is the Director of Research at the Integrace Institute at Copper Ridge.